10 Surbiton Road, Hartburn, Stockton on Tees, Cleveland TS18 5PZ, United Kingdom.

Telephone: 01642 584968
Email: susie@livingwithcerebralpalsy.com
Website: www.livingwithcerebralpalsy.com

I often get asked about my disability and I reply I have Cerebral Palsy, which effects my movement, and I also have Scoliosis. A few people look a bit puzzled when I mention Scoliosis as they haven't heard of it, I say to them well, its what's called curvature of the spine. I was born with Cerebral Palsy and diagnosed with Scoliosis in my twenties when I found out I had this condition I also didn't know what this was. I then decided to do my own research into this in terms of Cerebral Palsy and Scoliosis.

I browsed many websites although at the time there wasn't very much information available. I then decided to set up this website and discussion forum, so that I could make contact with other people in a similar situation as myself and share my experiences with others.

 

16 Blackberry Lane, Four Marks, Alton, Hampshire GU34 5BN, United Kingdom.

Telephone: 02071932931
Email: simone@scoliosisnutty.com
Website: www.scoliosisnutty.com

Scoliosis is a common orthopaedic condition affecting spinal alignment, growth, and function. A wide variety of conditions, many of which affect the neuromuscular system (eg, cerebral palsy, muscular dystrophy), are associated with the development of scoliosis. However, the most common form of scoliosis, which has an undefined etiology and affects otherwise normal adolescents, is the focus of this monograph.

My website and support forums are there for all people who have just been diagnosed with Scoliosis, whether you are a baby, teenager, adult, parent or friend of someone who suffers. Share your story on the website and read, connect with others in your area.

Join my Facebook fan page and share your Scoliosis tips, experiences, have a rant or just be part of the family so you know that you do not walk this journey alone!

 

Cleveland, United Kingdom.

Telephone: 01642 584968
Email: susie@livingwithcerebralpalsy.com
Website: www.bookcererbralpalsy.com

Born in Stockton-on-Tees with Cerebral Palsy, Susan Bennett throughout her early life was constantly told that she wouldn’t be able to walk, talk properly, move properly, swim, hold a job down or live a‘normal’ life – “Whatever that is,” says Susan. As she grew, Susan needed to prove this was not the case. Not to herself you understand, because she always knew she would be able to do these things, but to those in the medical and educational fraternity and other doubters If you would like to buy a signed copy please check out the website

 

16 Blackberry Lane, Four Marks, Alton, Hampshire GU34 5BN, United Kingdom.

Telephone: 02071932931
Email: wristbands@scoliosisnutty.com
Website: www.scoliosisnutty.com/wristband-purchase.php

As you are aware we have been running a questionnaire for the wristbands for some time and after a period of a few months we collected those questionnaires, read the results and then made a decision on which colours and tag line to choose.

The most popular choice of colour was purple and white, therefore, we have chosen purple and white glow in the dark, both using the same tag line, font and websites.

ScoliosisNutty created these wristbands in association with SAUK (Scoliosis Association UK), as the UK did not have an official wristband we decided we wanted to create one for the British people, I can now present the wristbands to you and we hope you like our choices.

ScoliosisNutty has funded these writsbands and is donating half their stock to the SAUK, all funds raised on behalf of these wristbands will go towards helping people with Scoliosis around the World, we hope to continue making merchandise and helping people where we can.

As ScoliosisNutty is not yet a registered charity all funds are handled by Simone Icough, should ScoliosisNutty be a success in raising money then we will apply to be a registered charity, if you have any queries, I am not hiding you can call or email me, I would be happy to discuss anything with you.