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Scoliosis

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Living with Cerebral Palsy

Living with Cerebral Palsy

10 Surbiton Road, Hartburn, Stockton on Tees, Cleveland TS18 5PZ, United Kingdom.

Telephone: 01642 584968
Email: susie@livingwithcerebralpalsy.com
Website: www.livingwithcerebralpalsy.com

I often get asked about my disability and I reply I have Cerebral Palsy, which effects my movement, and I also have Scoliosis. A few people look a bit puzzled when I mention Scoliosis as they haven't heard of it, I say to them well, its what's called curvature of the spine. I was born with Cerebral Palsy and diagnosed with Scoliosis in my twenties when I found out I had this condition I also didn't know what this was. I then decided to do my own research into this in terms of Cerebral Palsy and Scoliosis.

I browsed many websites although at the time there wasn't very much information available. I then decided to set up this website and discussion forum, so that I could make contact with other people in a similar situation as myself and share my experiences with others.

 
Support Groups & Charities/Support Groups
How To Look Good Twisted

How To Look Good Twisted

16 Blackberry Lane, Four Marks, Alton, Hampshire GU34 5BN, United Kingdom.

Telephone: 0207 193 9950
Email: simone@howtolookgoodtwisted.com
Website: www.howtolookgoodtwisted.com

I have been running support groups for many years for people with Scoliosis, this includes raising money for Scoliosis Research and making my own products for those with Scoliosis.

Over the past few years I have found sitting in a chair with a hard back to be very uncomfortable, leaving me leaning on my elbows while sat at a table, I am sure many patients with a rib hump will know where I am coming from! Due to these shoulder blade issues I decided to make a cushion using a simple design with beads, however, the cushion is not just any old beaded cushion you can find on the market, the Scoliosis rib hump cushion actually supports the un-even shoulder blade issue while sitting at a table, allowing you to be comfortable and even!


Pain Relief: Hot & Cold gel packs
Pillows:
Knee & Scoliosis rib hump cushions
Scoliosis Awareness:
Wristbands, keyrings and lanyards for Scoliosis awareness

 
Support Groups & Charities/Support Groups
The Skys the limit

The Skys the limit

Cleveland, United Kingdom.

Telephone: 01642 584968
Email: susie@livingwithcerebralpalsy.com
Website: www.bookcererbralpalsy.com
Born in Stockton-on-Tees with Cerebral Palsy, Susan Bennett throughout her early life was constantly told that she wouldn’t be able to walk, talk properly, move properly, swim, hold a job down or live a‘normal’ life – “Whatever that is,” says Susan. As she grew, Susan needed to prove this was not the case. Not to herself you understand, because she always knew she would be able to do these things, but to those in the medical and educational fraternity and other doubters If you would like to buy a signed copy please check out the website
 
Support Groups & Charities/Books
ScoliosisNutty

ScoliosisNutty

16 Blackberry Lane, Four Marks, Alton, Hampshire GU34 5BN, United Kingdom.

Telephone: 02071932931
Email: simone@scoliosisnutty.com
Website: www.scoliosisnutty.com

Scoliosis is a common orthopaedic condition affecting spinal alignment, growth, and function. A wide variety of conditions, many of which affect the neuromuscular system (eg, cerebral palsy, muscular dystrophy), are associated with the development of scoliosis. However, the most common form of scoliosis, which has an undefined etiology and affects otherwise normal adolescents, is the focus of this monograph.

My website and support forums are there for all people who have just been diagnosed with Scoliosis, whether you are a baby, teenager, adult, parent or friend of someone who suffers. Share your story on the website and read, connect with others in your area.

Join my Facebook fan page and share your Scoliosis tips, experiences, have a rant or just be part of the family so you know that you do not walk this journey alone!

 
Support Groups & Charities/Support Groups